Professional Bodies: How Best to Promote and Support Individuals Working in Human Genetics and Genomics Academic Article in Scopus uri icon

abstract

  • Professional bodies are dedicated to advancing professions by establishing technical and ethical standards that maximize public benefit and support their members. In the field of human genetics and genomics, these are primarily independent membership organizations coordinating professional activities for diverse roles, including clinicians, researchers, and counselors. Since the establishment of the American Society for Human Genetics in 1948, these bodies have played a fundamental role in setting quality standards, facilitating education, and guiding public policy on complex issues like genetic privacy and precision medicine. Recognizing the need for global coordination, the International Federation of Human Genetics Societies (IFHGS) was formed in 1996 as an umbrella organization. It fosters communication and shared learning, most notably through the International Congress of Human Genetics (ICHG). This quinquennial meeting convenes experts to share research and healthcare perspectives; the upcoming 15th ICHG will be organized by RELAGH in Mexico in 2027. Strategic collaboration is now essential for these societies to act as authoritative sources against misinformation, amplify young leaders, and provide evidence-based guidance. This ensures public policy rests on sound science, guaranteeing that genomic advances ultimately benefit all humanity.

publication date

  • January 1, 2026